Evan... Then
Evan... Now
Today Evan and I did the March of Dimes walk with my friends Casey and Ly, and their kids. Evan was born premature at 27 weeks gestation and Casey's girls were born at 25 weeks gestation. Four miracle children all born weighing under five and a half pounds collectively. March of Dimes is a non profit organization whose mission is to improve the health of babies by
preventing birth defects, prematurity, and infant mortality.
Evan was really excited to have a day with just Mommy. This morning he told Calum
"It's MY special day with Mommy, you CAN"T come ONLY Mommy and Evan".
It was so stinkin hot (100 degrees), but we had a great time. I think Evan's favorite parts of the whole day was running through the water hose the firemen were shooting at the park after the walk was over, and drinking soda and eating lots of chips.
Today gave me a chance to reflect on Evan's birth, our NICU journey, and just how very blessed I am that he is thriving and doing so well in spite of being born at 27 weeks, and weighing only one pound 15 ounces at birth. His asthma continues to be a struggle (really bad the last few months), but he is otherwise healthy. He is now taking the much dreaded oral steroid prednisolone (two more days for a five day total burst) since his asthma was getting out of control and that seems to be the only thing that will help when it gets that bad. We have a Pulmonolgy appointment next week to figure out a new plan of action. We will discuss changing up his medications since what he's on now does not seem to be preventing his asthma attacks.
Today also reminded me that Evan was one of three, and how my babies whom I never met are in heaven and will always leave two holes in my heart (Ian and Gavin). They are my missing pieces. I can't help but wonder what it would have been like to see Evan running around with his brothers. I find comfort in my faith and knowing full well that God has his hand in my life, and is in control.
I hope to never lose sight of my blessings in spite of my loses, and am grateful that God has blessed me with two incredible, healthy, thriving boys who keep me running from sun up to sun down. I love my boys!!!!!
Here are some fun pics from our day. It was fun to go with my pals. I love ya sistas!
Makena, Alyssa, and Riley
Soda..and it's all mine!!!
The whole gang!
Running through the water with Lissie and Evan!
Today gave me a chance to reflect on Evan's birth, our NICU journey, and just how very blessed I am that he is thriving and doing so well in spite of being born at 27 weeks, and weighing only one pound 15 ounces at birth. His asthma continues to be a struggle (really bad the last few months), but he is otherwise healthy. He is now taking the much dreaded oral steroid prednisolone (two more days for a five day total burst) since his asthma was getting out of control and that seems to be the only thing that will help when it gets that bad. We have a Pulmonolgy appointment next week to figure out a new plan of action. We will discuss changing up his medications since what he's on now does not seem to be preventing his asthma attacks.
Today also reminded me that Evan was one of three, and how my babies whom I never met are in heaven and will always leave two holes in my heart (Ian and Gavin). They are my missing pieces. I can't help but wonder what it would have been like to see Evan running around with his brothers. I find comfort in my faith and knowing full well that God has his hand in my life, and is in control.
I hope to never lose sight of my blessings in spite of my loses, and am grateful that God has blessed me with two incredible, healthy, thriving boys who keep me running from sun up to sun down. I love my boys!!!!!
Here are some fun pics from our day. It was fun to go with my pals. I love ya sistas!
Makena, Alyssa, and Riley
Soda..and it's all mine!!!
The whole gang!
Running through the water with Lissie and Evan!
6 comments:
OK, totally weaping...Thanks for sharing such personal feelings and emotions of both joy and pain! And thank you God for both Jessica and Evan (of course the whole fam too)...we know you are looking after Ian and Gavin and the whole family will be reunited one day!
Love ya! Brandi
PS note to self...use spell check..."weeping"
It is so amazing to look back at the NICU pictures and see how far our miracles have come. Your two angels in heaven are watching over your two angels here on earth.
Big hugs sista!
You and Casey amaze me. Your kids amaze me. I am so glad you guys had your babies in a time when it's possible for them to be so healthy three years later. Like I said, amazing.
Glad the walk was so much fun!
i just want to say I love you sista.. love ly
I love the page! You are such a good mommy! See you soon,
Mary Beth
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